Ottawa, Apr 30 (Canadian-Media): More than 500 new long-term care (LTC) beds are being created by Ontario to help francophone seniors access high-quality care and continue to live happy and healthy lives, media reports said.
“Just like the rest of the population, Franco-Ontarians are aging rapidly. Our government understands the need to support Francophone seniors and their families so that they get the best care possible in their community. As part of our commitment to create 30,000 new beds across the province over the next 10 years, the 128 new long-term care beds in Ottawa will increase the Francophone capacity in the region and contribute to a healthier and stronger Francophone community,” Marie-France Lalonde, Ontario Minister of Francophone Affairs said.
These new beds are part of Ontario's commitment to build 5,000 new beds by 2022 and more than 30,000 new beds over the next decade.
Revera will receive 128 francophone-specific long-term care beds, as part of this investment, to be managed in partnership with Hôpital Montfort.
“Our government is committed to ensuring that long-term care homes have the necessary support to meet the needs of our aging communities. By adding 128 new long-care beds in Ottawa, we are helping more seniors access the care they need close to family and friends, ” John Fraser, Parliamentary Assistant to the Minister of Health and Long-Term Care and MPP, Ottawa South had said
French-speaking services would be provided to the residents at the home to support better communications with care providers.
“Our government is committed to supporting francophone communities and the new beds will help those who rely on long-term care homes for their ongoing health and personal care needs. These beds are part of 5,000 new long-term care beds that are being created provincewide, which help to deliver on our commitment to increase long-term care capacity by 2022 as part of Aging with Confidence: Ontario’s Action Plan for Seniors. This is the first step to create more than 30,000 new long-term care beds over the next decade and helping more seniors access the care they need in their community, close to family and friends,” Dr. Helena Jaczek
Ontario Minister of Health and Long-Term Care said.
Ontario is also investing more than $300 million over the next three years to hire an additional registered nurse at every long-term care home, and to increase the provincial average to four hours of daily care per resident by 2022. This will ensure that every home will have staff with specialized training in behavioural supports and in palliative and end-of-life care.
“Today’s announcement by the Ontario government is great news for the local francophone community, for Montfort Hospital and for Revera. We look forward to working with our partners at the hospital to build a new 128-bed long term care home here. We will create a new home-like environment that is specially designed to meet the increasingly complex care needs of seniors in the region.”
Wendy Gilmour, Senior Vice President, Long Term Care, Revera Inc said.
“We are delighted that Revera has taken the initiative to submit an application for long-term care beds for French-speaking residents in Ottawa. We take pride in our partnership with Revera since 2003, and look forward to working with them to ensure this project gets completed.” Dr. Bernard Leduc, President and CEO, Hôpital Montfort said.
The government is also improving life for more seniors by expanding OHIP+ in 2019 to make prescription drugs free for everyone 65 and over; Investing $650 million in new funding over three years to improve home and community care services; Creating the Seniors' Healthy Home Program to help those over 75 offset the costs of living independently with a $750 annual credit.
In addition to these francophone service, the Perley and Rideau Veterans’ Health Centre in Ottawa is also receiving 84 beds to support their senior’s village expansion project.
The 5,000 new long-term care beds will include nearly 500 new beds for Indigenous communities and over 1,500 new beds for specific cultures, including francophone communities. The new beds are also in addition to the 30,000 existing beds that are being redeveloped under the Enhanced Long-Term Care Home Renewal Strategy.
The government is investing more than $100 million over three years in Ontario’s Dementia Strategy, including $37.5 million to expand community dementia programs and respite care services.
The 2018 Budget also includes an $8 million equipment fund to prevent falls and injuries to keep residents and support workers safe.
Ontario’s proposed new Drug and Dental Program will allow individuals and families without extended health coverage to be reimbursed up to 80 per cent of eligible prescription drug and dental expenses. This represents an investment of more than $800 million over the program’s first two years.
“Many aging francophone Ottawa-Vanier residents have increasing health and personal care needs. I am very pleased that these new francophone long-term care beds in Ottawa will allow some of our seniors to access the care they need right here in their community,” Nathalie Des Rosiers, MPP, Ottawa Vanier said.
“At the Perley Rideau, we have the expertise, the experience and the location to accommodate more beds for the growing population of seniors. This expansion supports our aspirations to become a Centre of Excellence in Frailty-Informed Care on our journey of continuous improvement supporting the region’s seniors – and Veterans. We thank the Ontario Government, specifically the Ministry of Health and Long-Term Care, for this expression of support for our vision,” Akos Hoffer, CEO, The Perley and Rideau Veterans' Health Centre said.
#DougFord, #supervisedinjectionsites, #opioidcrisis, #DebMatthews, #HelenaJaczek #FranciscoSapp, #AndreaHorwath, #ZoeDodd
Ottawa, Apr 21 (Canadian-Media): Doug Ford, Ontario Progressive Conservative (PC) Leader had said Friday in Sarnia, Ontario that he was "dead against" supervised injection sites and added the focus should instead be on drug rehabilitation services, media reports said.
"I don't believe in safe-injection areas, as I call them. I believe in supporting people, getting them help," Ford said.
"I ask anyone out there, if your son, daughter or loved one ever had an addiction, would you want them to go in a little area and do more drugs? I'm dead against that."
Such a statement in the wake of the present public health emergency with reported 1,053 opioid-related deaths from January to October of last year, compared with 694 during the same period in 2016 was not welcomed by the governing liberals as well as by New Democratics.
Health Minister Helena Jaczek, meanwhile, said Ford's comments on safe injection sites at the present public health emergency not only put people's lives at risk but also perpetuate the stigma around mental health and addiction.
"Has Doug Ford ever even visited one of these sites? Because if he has, he would know that beyond reversing overdoses, these sites regularly connect substance users to addictions treatment, withdrawal management programs and other health and social supports that they would otherwise never have access to," she said in a statement.
New Democratic Party (NDP) Leader Andrea Horwath also said Ford's option would "drag Ontario backwards and deny people the care they need."
"The opioid overdose epidemic has touched every community in Ontario and devastated families," she said. "New Democrats will listen to front-line care workers, declare a public health emergency and take urgent action to save lives."
Ford said that the cost of opioid crisis was more than $1,000 a day for someone to go to rehab, and added he would rather help people who were struggling with addiction and added if he became premier in June, he will do everything in his power to eradicate ongoing opioid crisis.
When pressed for details, his campaign said Ford would release his plan to address mental health and the opioid crisis in the coming weeks.
The governing Liberals had reportedly promised to add 30,000 new long-term care beds in the next decade to which New Democrats had said they would create 40,000 in that time.
Liberal campaign co-chair Deb Matthews said that Ford needed to explain his plans to pay for the new beds considering his earlier pledge to reduce government spending.
To this also Ford did give any suitable details and said his campaign would provide more information on costing in the coming weeks.
Francisco Sapp, co-director of the Ontario HIV and Substance Use Training Program, made it clear that opioid crisis has become a public health emergency in the wake of drugs not been decriminalized.
Till then, Sapp pointed out, that harm reduction strategies such as supervised consumption sites were the best option to keep people alive amid this public health emergency and added that for people who are in the midst of opioid crisis, access to treatment and rehabilitation centres was appropriate for them.
Sapp said abstinence-based programs would reportedly have a low success rate, and forced rehabilitation would be "drastically lower," he said.
On the other hand, reported Sapp, harm reduction had proven to be effective in reducing opioid-related deaths and said about 200 overdoses had been reversed at site at Toronto's Moss Park so far.
Zoe Dodd, a harm reduction worker in the east downtown and an organizer at Moss Park site said,
"Without overdose prevention sites, lots of people would be dead, and that's what we don't want to see. I think it's time we take the politics out of healthcare. This is a public health emergency and we need to respond as such," Dodd told CBC Toronto.
"We cannot be having ideological debates, and right now we need to work with what that evidence is, and if he was premier, he should support the evidence and the evidence shows that these work," she said.
"You can't argue with 203 overdose reversals, and if you do argue against that, then you're okay with death, and I don't think that any premier of Ontario should be okay with deaths."
The province had approved earlier this year funding for seven supervised injection sites, five of which had already opened.
Late last year the federal government had exempted Ontario for any permission for approval and fund temporary overdose prevention sites. The first such site opened in London, Ont., in February.
The government had pledged more than $222 million spending over three years to tackle the growing opioid crisis in the province, with money earmarked to expand harm reduction services and hire more frontline staff.
(Reporting by Asha Bajaj)
#medicalcannabis, #Charlottetown, #P.E.I., #Canada, #Don’tTaxMedicine, #CanadiansforFairAccesstoMedicalMarijuana, #Organigram, #AnnieMacEachern
Ottawa/Charlottetown (P.E.I), Apr 13 (Canadian-Media): The national call against tax-free medical cannabis was joined by a Prince Edward Island ( P.E.I.) group on “Don’t Tax Medicine” event at the Farm Centre in Charlottetown Thursday from 6:30 p.m. to 8:30 p.m., media reports said.
The event being hosted by P.E.I.-based Gocanna is being presented in partnership with Canadians for Fair Access to Medical Marijuana and sponsored by Organigram, one of three licensed producers to provide products to P.E.I.’s cannabis retail locations.
Besides industry stakeholders on a panel discussion as well as a Q&A session and and light refreshments, the event will include three local medical cannabis patients .
Annie MacEachern ,P.E.I. medical cannabis advocate, said the excise tax is in addition to the HST already subjected to by medical patients.
She described medical cannabis as useful in harm reduction, pointing to studies that showed the number of opioid-related deaths decreasing in states that have legalized medical and recreational cannabis.
“When (medical cannabis) is not considered a regular prescription, it doesn’t have a DIN (Drug Identification Number) associated with it. We’re kind of discouraging people from taking a harm reduction approach, especially people who struggle with addictions,” said MacEachern, who added the goal of the event is to help educate patients and public of the cannabis tax and what they can do to enact change.
Dr. Sana-Ara Ahmed, a chronic pain specialist with Alberta’s The Health Boutique, will also share her insight.
Being unable to find an Island doctor willing to participate in discussion of medical cannabis, MacEachern sought the help of an outside expertise via Skype to provide information.
“If local doctors don’t feel knowledgeable about using cannabis as a medicine, that’s OK,” said MacEachern. “But I hope that they will come out on Wednesday night because I think they are sure to learn something new.”
Reporting by Asha Bajaj)
Training app simulates auditory hallucinations, teaching officers to de-escalate
Katie Nicholson · CBC News · Posted: Apr 12, 2018 3:00 AM CT | Last Updated: April 12
Using a program that simulates voices in a subject's head, Winnipeg police Sgt. Julio Berzenji, left, works with Const. Dan Atwell and Patrol Sgt. Rob Thimm, right, to learn how to de-escalate confrontations during a mental health crisis. (Trevor Brine/CBC)
This story is part of Deadly Force, a CBC News investigation into police-involved fatalities in Canada.
A Winnipeg company has created a program to help police experience what it's like to hear voices in your head to improve how officers respond to people in a mental health crisis.
"It's a game-changer," said Sgt. Julio Berzenji of Winnipeg Police Service.
Police officers can now quickly learn what would have otherwise taken months or years to learn through work experience, he said.
"When somebody participates in this kind of training and they hear those voices, it's like there's this light bulb that goes on," said Berzenji.
A CBC News analysis of police-involved deaths since 2000 found that 70 per cent of those who died had mental health or substance abuse problems.
And police are having increased contact with people in mental health crisis.
That's one of the reasons Winnipeg-based SetCan, which makes reality-based training products for police and military forces, created SimVoice.
A trainer uses SimVoice to control the voices heard in headphones during the training experience. The trainer can make things easier or harder, depending on how well police are performing. (Trevor Brine/CBC)The program is simple. An officer wears wireless headphones connected to the app which runs on any mobile device. The app has a number of pre-programmed scenarios in which voices speak to the person wearing the headphones, who is armed with a knife, gun or bat.
As fellow officers try to de-escalate the situation, the other must comply with the voices.
The trainer can make things easier or harder, depending on how the officers are doing. The voices may become increasingly paranoid of police or they may tell the person to comply.
CBC News Manitoba
Police learn what it is like to experience auditory hallucinations through special app designed in Winnipeg
Winnipeg Police train with SimVoice, an app that helps law enforcement experience auditory hallucinations so they can better deal with people in mental health crisis in the field. 2:44For the person wearing the headphones, it's a jarring experience.
"It was very, very difficult because there are so many different voices that are coming through at different tones, at different levels, and telling me to do things that are contradictory to what the officer was telling me to do," said Const. Justin Casavant, a Winnipeg police officer with 15 years under his belt.
"This gave me a little bit of insight into what that person may be dealing with."
To replicate the feel of auditory hallucinations, SetCan employee Jonathan Wilson plowed through medical journals and blogs about mental health.
Winnipeg police Const. Justin Casavant says SimVoice gave him insight into what a person in a mental health crisis might be experiencing. (Trevor Brine/CBC)"I researched a lot of first-hand accounts," he said. "What do people actually hear who have auditory hallucinations?"
The audio includes a wide variety of noise and voices coming from different directions. Some are whispers, others in full voice. Sometimes there are other sounds mixed in, like someone sobbing in the background.
"[The subject's] brain is sort of filled with information, so they sort of get this flat affect, and these thousand-yard stares, as they're commonly referred to," he said.
Quail hopes wearing the headsets will help officers get better insight into what may be going on behind that flat affect.
"That maybe this is not an individual that is thinking about launching an attack, but maybe this is an individual that is experiencing some sort of psychosis and they're actually more afraid of us than angry at us."
SetCan's employee Jonathan Wilson researched what people hear when they have auditory hallucinations.(Trevor Brine/CBC)Quail developed the program after attending a law enforcement conference four months ago, and made it free to any police force.
"If we can save one life… if we can have officers properly interpret some behaviour differently that leads to good results, then I think we've accomplished a lot."
The Winnipeg Police Service has been one of the first to adopt the program but Quail said more than 100 police forces across North America have expressed interest.
It can be very difficult for officers to make that connection.- Sgt. Julio Berzenji, Winnipeg Police ServiceBerzenji, a longtime trainer with the Winnipeg police, believes the program will improve the interactions with people with mental health problems.
"It's going to provide maybe some more insight into what they're experiencing, it helps to tap into that empathy, and then ideally, it's going to make our officers even better communicators," he said.
But the 16-year veteran said training alone won't solve the problem, because often, by the time police get involved, the person is already in a crisis state.
"I think a lot more has to be done, kind of on the front end, to prevent individuals entering into that crisis state," he said. "Because once they're in that crisis state, I gotta tell you, it can be very difficult for officers to make that connection, and to communicate in a way that allows them to bring that person down."
SimVoice is one industry-based response to the rise in contacts between those with mental health issues and police, something criminologists say is linked to a lack of resources in communities for those with mental health problems.
Government responses Government responses to CBC's Deadly Force findings have been mixed.
Days before CBC News published its findings, the government of Ontario announced it would develop new de-escalation and use-of-force training for police by this summer.
Manitoba said it will issue a new report this spring that will "highlight opportunities to enhance mental health and addictions services" in the province. It also said it is working with the criminal justice system to "produce better outcomes for individuals that interact with the system."
'If we can save one life,' says SetCan CEO and former police officer Jeff Quail, 'I think we've accomplished a lot.'(Trevor Brine/CBC)B.C. said that it monitors use of force data and, since 2012, has ensured all front-line officers have training in crisis intervention and de-escalation.
Alberta declined comment.
In a statement to CBC, Public Safety Minister Ralph Goodale said Ottawa is "committed to evidence-based policy" but stopped short of committing to tracking all police-involved fatalities in a national database.
"It is premature to comment on the possibility of collecting additional national data related to the work of CBC's Deadly Force investigation. While RCMP tracks this information, there are over 300 other police forces in Canada," he said in a statement.
#KathleenWynne, #Seniors’HealthHomeProgram, #Ottawa, #Ontario
Ottawa, Apr 11 (Canadian-Media): In its commitment to improve access to high-quality care for seniors, the Ontario government is investing for seniors to make sure they have access to high quality, professional care, whether they are living at home or in long-term care, media reports said.
This new investment, said Ontario Premier Kathleen Wynne, will make a meaningful difference in the lives of seniors and their caregivers.
“Our seniors deserve the same dignity and comfort in their golden years that they have given to others along the way — as mothers and fathers and mentors and coworkers,” Wynne said to a room filled with caregivers this morning.
Kathleen Wynne/ Facebook
A funding of $300 million over three years would be given to long-term care homes to enable them to increase care hours and support hiring more nurses and personal support workers.
This measures would reportedly help Ontario in its committment to reaching a provincial average of four hours of direct care per day for every resident in long-term care.
An investing $650 million over three years by Ontario government would also help in increasing personal support, nursing and therapy visits and caregiver respite hours.
It is estimated that the number of seniors in Ontario is expected to grow from 2.4 million today to 4.5 million by 2040.
“This is no time to cut seniors care,” Premier Wynne said. “We need to do more and these investments will ensure our parents and grandparents get the care they need, when and where they need it.”
To prevent falls and injuries in every long term care home and to better care for residents with dementia, Ontario is committing to an $8 billion equipment fund.
Most importantly, Seniors’ Health Home Program, would receive a $1 billion investment over three years.
This will provide up to $750 per year for eligible households led by seniors who are 75 years and over and choose to live independently in their own homes.
Since 2013, the government has expanded its investment in home and community care by about $250 million per year, in addition to ongoing funding of more than $5 billion.
Ontario is providing better access to care in hospitals, reducing wait times, and to more efficiently meet the needs of Ontario's growing and aging population through an additional $822 million investment in 2018–19 — the largest increase to the hospital sector in almost a decade.
Approximately $19 billion in capital grants over 10 years would be provided by the province to continue building infrastructure to support the health needs of local communities and residents.
(Reporting by Asha Bajaj)
#Quebec, #Canada, #prosthetics, #GaétanBarrette, #QuebecBreastCancerFoundation, #KarineIseultIppersiel, masectomy
Toronto, Apr 11 (Canadian-Media): Quebec, which reports 6,000 new cases of breast cancer every year, will now cover the cost of breast prosthetics for cancer patients who have undergone complete or partial mastectomies, Quebec Health Minister Gaétan Barrette said Tuesday morning, media reports said.
The cost of this program will reportedly be $3.6 million per year.
Quebec Breast Cancer Foundation reported that in Quebec one woman out of eight were diagnosed with breast cancer and that 70 percent of patients undergo some form of mastectomy.
A breast prosthetic can cost up to $425 for a woman who has had a complete mastectomy, and $250 for someone who lost only part of the breast.
Before this announcement was made, Quebec was covering 50 percent of the cost of gel, silicone or fabric prosthetics placed inside a bra, unlike surgical implants which are not covered.
10,000 women will reportedly will be eligible to access this program every year.
"We are very happy to hear this," said Karine Iseult Ippersiel, vice-president of development at the Quebec Breast Cancer Foundation.
"When a woman goes through a mastectomy, it's the self-esteem that takes the biggest hit," said Iseult Ippersiel. "You can't hide it."
This program would enable the womenm to change their prosthetics for free every two years.
"They are expensive," said Iseult Ippersiel. "You don't own 12 pairs like a pair of shoes."
(Reporting by Asha Bajaj)
Toroto, Apr 11 (IBNS):
April 11, 2018
In light of unprecedented demand for services from people experiencing homelessness, the City of Toronto will extend availability of 24-hour respite sites beyond the scheduled April 15 closure. With two existing sites unable to continue operation, the City will open two new temporary 24-hour respite sites in May to ensure the ongoing availability of meals, service referrals and places to rest for those who are experiencing homelessness in Toronto.
"On January 31, City Council directed us to retain operations of the necessary respite programs beyond the scheduled April 15 closures to respond to the high demand in the shelter system," said Paul Raftis, General Manager of Shelter, Support and Housing Administration, the City division responsible for housing and homelessness services. "Together with our community and City partners, we've developed a plan that means everyone who asks for service is offered a safe and welcoming place to go."
Respite sites are designed to broaden the services available to those experiencing homelessness. They provide 24-hour essential supports in an environment that prioritizes ease of access and admission to the facility. Having these lower barriers makes respite sites more accessible, especially to those who are vulnerable.
The two new temporary 24-hour respite sites are located at arenas owned and operated by the City of Toronto. Lambton Arena at 4100 Dundas St. W. will open May 7, and Don Mills Civitan at 1030 Don Mills Rd. will open May 21. While these facilities provide safe places for Torontonians to seek respite, there will be no interference with existing programs as no programming occurs at these sites during the summer months. Each site has sufficient shower and washroom facilities, welcomes pets, will serve all genders and is accessible by public transit.
The opening of these two new temporary 24-hour respite sites will coincide with the closing of two existing sites in May, 348 Davenport Rd. and the Better Living Centre. All other respite sites will remain open at their current locations and at their current capacity with the exception of Margaret's on Dundas St. E. which was unable to accommodate the request for full-service continuation due to building repairs. That program will continue with 50 spaces, scaled back from 110 as of April 15. A plan is in place to connect service users with housing or offer options for alternative shelter and respite sites. Existing respite locations continue to be pet-friendly, and three are for women only.
The City will also introduce standards for 24-hour respite sites by mid-November, in time for the 2018-2019 winter season. Interim standards will be posted to the City's website by the end of April, and broad consultations will begin later this spring.
Since the beginning of 2018, the City has added 807 shelter beds, including 648 beds in motel programs and 159 in emergency shelter programs.
A separate initiative is underway and on track to create 1,000 new shelter beds by 2020.
Service information about homelessness programs in Toronto is available at http://www.toronto.ca/homelesshelp.
The following 24-hour respite sites will remain open until further notice:
• 354 George St., operated by Homes First. Capacity: increasing to 105 from 100.
• 201 Cowan Ave., operated by Dixon Hall, for women only. Capacity: 21.
• 705 Progress Ave., operated by Warden Woods. Capacity: 49.
• 21 Park Rd., operated by Margaret's. Capacity: 30.
• 25 Augusta Ave., operated by St. Felix. Capacity: 50.
• 323 Dundas St. E., operated by Margaret's. Capacity: decreasing to 50 from 110.
• 962 Bloor St. W., 24-hour drop-in for women only, operated by Sistering. Capacity: 50.
• 67 Adelaide St. E., 24-hour drop-in for women only, operated by Fred Victor. Capacity: 67.
The following 24-hour respite sites will close in May 2018:
• As of May 11, services will close at the Better Living Centre, located at 195 Princes' Blvd. in Exhibition Place. A plan is in place to connect service users with housing or offer options for alternative shelter and respite sites, including a new service at Lambton Arena, 4100 Dundas St. W. which opens its doors on May 7.
• As of May 25, services will no longer be available at 348 Davenport Rd. The site will be renovated and re-open later this year as a new permanent shelter for women. A plan is in place to connect service users with housing or offer options for alternative shelter and respite sites, including a new service that opens on May 21 at Don Mills Civitan Arena at 1030 Don Mills Rd.
The following new 24-hour respite sites will open on a temporary basis for approximately four months:
• Opening May 7, 2018: Lambton Arena, 4100 Dundas St. W. Operated by Fred Victor. Capacity: 100. TTC directions: travel to High Park subway station and board the 30 Lambton bus to Howland Avenue.
• Opening May 21: Don Mills Civitan Arena, 1030 Don Mills Rd. Operated by City of Toronto. Capacity: 100. TTC directions: travel to Pape subway station and take the northbound 185 Don Mills bus to Lawrence Avenue.
#Autism, #AgingandAutismThinkTank, #DiagnosticandStatisticalManual, #AutismCanada, #DermotCleary, #LaurieMawlam, #VivianLy, #CanadianAutisticsUnited
Ottawa, Apr 6 (Canadian-Media): There is at present, a lack of available resources to take care of the challenges faced by autistic seniors or to understand their specific needs, media reports said.
The study Aging and Autism Think Tank -- compiled by academics, clinicians and autistic adults from five different countries and released by Autism Canada -- pointed out that autism as a term is confined only to childhood, leaving older population
The research evolved over decades and the programs resulting from it, said the report of the study, have been focused almost exclusively on children.
"[Autism] is absolutely misunderstood at a societal level, but even more concerning is that it's misunderstood among clinicians and caregivers and professionals," said Kevin Stoddart, a member of the think-tank and director of Toronto's Redpath Centre for autistic people of all ages.
"That lack of understanding can really do harm and affect somebody's long-term outcome really adversely if they're not diagnosed and supported in ways consistent with autism."
Though autism was first identified in 1943, said the report, it did not enter the Diagnostic and Statistical Manual until 1980.
Laurie Mawlam, executive director with Autism Canada – the organization which advocates on behalf of autistic people -- said her organization is facing increasing pressure to fill the gap between children who are well-supported through their youth are left with few to no resources once they turn 18.
The think-tank's report also highlighted that those with autism and co-occurring conditions struggle to communicate the exact nature of their pain or other symptoms, resulting in misinterpreting their behaviours by medical professionals.
"More research is needed on how co-occurring medical conditions contribute to behaviour and experiences, and how this changes with age, thus shifting the focus from behaviour management to the biological causes of behaviour," the report said.
Vivian Ly of Canadian Autistics United said the conversation the think-tank is promoting is necessary and "a long time coming."
Ly praised the group's emphasis on wider inclusion of autistic people from all walks of life, genders and ethnic backgrounds,
"Rhetoric about finding a cure for autism is concerning," Ly said, noting such conversations make false assumptions about the value of autistic people's lives. "My hope is that researchers move away from curing autism and move towards supporting autistic people in living full, authentic lives."
(Reporting by Asha Bajaj)
#Edmonton, #Alberta, #Canada, #sicklecellanemia, #stemcelltransplant, #RevéeAgyepong, #AlbertaHealthServices, #StephanieAmoah, #DrAndrewDaly, #TomBakerCancerCentre, #Calgary,
Edmonton (Alb), Apr 4 (Canadian-Media): An Alberta woman is the first adult in Canada to be cured of sickle cell anemia with stem cell transplant, media reports said.
Revée Agyepong, 26, of Edmonton, Alberta had reportedly been diagnosed with the disease as a toddler and experienced chronic bone and joint pain, irregular heartbeat, kidney stones and shortness of breath
"I remember as far back as elementary feeling sickle cell complications and not knowing what it was," she said.
"I thought that everyone would go out for recess and play, then come back with a terrible headache and body pain, couldn't breathe … eventually I realized it was just me."
Revée Agyepong/Courtesy of CBCNews
Sickle cell anemia is reportedly a genetic disease which changes red blood cells into a semi-circular shape and block blood vessels and puts every organ in the body at risk.
Agyepong had learnt about the success of the treatment in pediatric patients, but doctors told her she was too old to undergo the procedure.
According to Alberta Health Services, the older the patient and donor in bone marrow transplants, the greater the risk of graft versus host disease, which is a type of immune rejection that can have serious health repercussions and can even result in death.
Stephanie Amoah, Agyepong's older sister, did some research with other centres who were treating adult patients and then approached Agyepong's doctors and told them of the treatment going on in the east coast of the United States.
Dr. Andrew Daly, who leads Alberta's bone marrow transplant program and oversaw Agyepong's stem cell transplant, said they also had been thinking about treating adults.
Dr Andrew Daly/Facebook Page
After Amoah was tested and found to be a 100 percent match for her sister, Amoah underwent a process called apheresis that collected her sickle-cell-free stem cells, which were then given to Agyepong.
The transplant, which took place at Calgary's Tom Baker Cancer Centre turned out to be a success as Agyepong's blood tests did no show any signs of the disease.
Agyepong said after her full recovery, she plans to dedicate her time to advocating for the disease.
"I want to travel somewhere exotic and somewhere warm and feel dehydration like anyone else would, because I couldn't with sickle cell, I would be dehydrated and end up in the hospital," she said.
"It sounds so insignificant but it's really exciting just to be able to be more spontaneous."
(Reporting by Asha Bajaj)