Epilepsy, defined as a wide range of seizure disorders of the central nervous system, specifically the brain is reported to be found 1 in 100 Canadians, that is more than 300,000 Canadians and 50 million people worldwide.
Members of the Canadian Epilepsy Alliance (CEA), In Ottawa, planned to hold a reception on Parliament Hill with 14-year old Megan.
CEA tweeted that needs of patients who use cannabis for medical purposes must remain at the heart of policy reform.
Canadian Epilepsy Alliance: Facebook page
Every year Epilepsy Toronto had been organizing an Annual Conferences that covers a variety of topics important to our clients and members. This year's conference "Beyond The Medical: Epilepsy Self-Management and Advocacy Epilepsy Toronto Conference and AGM 2017" would be held on Saturday May 13th, 2017 between 8:30am – 3:30pm YMCA- 20 Grosvenor Street Toronto.
Showing awareness and expressing concerns for epilepsy in the society members of parliament also rose to support its cause.
Conservative MP Patrick Brown said, “Those living with epilepsy face challenges, discrimination and often times a lower quality of life”, GlobalNews reports said.
NDP MP Mathew Kellway said “This is what’s in our hearts today, on this, the first official day for epilepsy awareness,” GlobalNews reports said.
Volunteers from Epilepsy Toronto were stationed in different areas including many hospitals in Toronto to distribute information cards and collect donations.
Union Station and downtown Toronto’s PATH system had been painted purple.
Drew Woodley, Director of Communications for Epilepsy Toronto said that it was important the message should be spread far and wide to raise better understanding about epilepsy.
An event was planned by Elgin and Winter Garden Theatre Tuesday to encourage participation of public in a scavenger hunt and face painting.
In recognition of Purple Day SickKids Hospital in Toronto, which is also home to school for children with intractable epilepsy, encouraged children to make t-shirts, decorations and artwork.
“For purple day, we really try to get the kids involved and know that it’s not a hidden secret and they should be involved,” said Dr. Elizabeth Kerr, Director of Epilepsy Classroom, who provides them with neuropsychological consultation.
“The classroom is really established as a remedial program for kids with epilepsy who also have some learning issues,” Kerr said. “But the added piece is that we really want to empower them to live well with epilepsy and to build resilience so they can be the best selves they can be.”